I recently spent time with an Arti Community member who has dementia. As you may know, the daily routine for people with dementia is generally increasingly structured as the dementia progresses to minimize stress and paranoia and prioritize all things familiar. Schedules also help the caregiver preserve their own sanity, minimizing the “new” things in a day to juggle. 

As someone relatively new to the caregiver role to someone older than myself, I found that even within the normal routine, there were traps I nearly fell into every which way I turned. When you are unaccustomed to the way the brain plays tricks as dementia progresses, it’s easy to overlook complications that someone with dementia will face with day-to-day activities.

In today’s ARTIcles story, I am using the ubiquitous smart phone as both an example and as the flashing light that showed me, a founder of Artifcts, just how special the Artifcts experience and lifestyle is for caregivers and people with dementia. It’s so much more than an app.

_____________

Everyone is attached to their phones these days like they’re a vital appendage. And unless you are leaning over someone, you are not generally privy to what they are looking at on the phone.

In the case of this Arti Community member, she was checking and clearing out her Yahoo! email. In the process, she was sometimes clicking through on emails that grabbed her attention. One such email was filled with “Friend” suggestions from Facebook. To be clear, none of these people were her friends. And based on the profile pictures and names, as well as absence of connections to other legitimate friends, they should not become her friends either. 

Artifcts Offers a Warm, Safe Experience

Seeking to avoid this Facebook dilemma, I was reminded of vital attributes of Artifcts that further separate it from social media, especially for those with declining cognitive health. Artifcts means:

1. 1. 1. No ads leading you down meaningless and potentially costly rabbit holes.
      2. No algorithm encouraging you to befriend strangers.
      3. Stories, without the story burden (pesky reminders and deadlines, irrelevant questions, and the stress of a project).
      4. An activity to do together, with in-the-moment benefits and benefits for years to come, too.

Artifcts offers you bite-sized memories and stories. Your stories and stories loved ones have shared with you. We spent over 30 minutes together inside the Artifcts app reading story after story, her stories, and stories loved ones had shared with her. The stories evoked warm, safe memories and a feeling of connection with her loved ones. She added further color commentary to some of the items in the Artifcts. “Poor, Scotty, he was always losing his fur,” she remarked about a stuffed dog she's had since she was a child. 

Revisiting Artifcted stories was relaxing for us both, the person with dementia and the caregiver. Browsing Artifcts offered a reprieve from the demands of any schedule and of treating her like a patient. 

We transitioned then from browsing Artifcts to me helping her to create a few new Artifcts for herself.

Artifcts are like art, no two are the same. So while creating Artifcts can evoke positive memories, research also supports that the art of storytelling and exercising the creative and memory parts of brain, as when we create Artifcts, are good for our cognitive health. And, bonus, each Artifct we created was set up to be instantly shared with her immediate family members. Those Artifcts are like little gifts arriving in their inboxes – surprise – and become tangible evidence of time well-spent together.

_____________

To all the caregivers out there, we see you and value all you do. We beseech you to sprinkle Artifcts into your days so you can just be husband and wife, mother and daughter, best friends – people first, patient-caregiver second. And remind yourself, every moment of the day need not be about what they need. Prioritize your health, happiness, and sanity, too!

Wishing you a merry holiday season!

P.S. In case you have not heard, AARP chose Artifcts for its 2024 Gift Guide. You can browse the complete guide here.

###

© 2024 Artifcts, Inc. All Rights Reserved.

When decluttering, what stays and what goes somehow gets more and less complicated simultaneously when the process involves the belongings of someone who has advancing dementia. It’s doable, of course, but understanding what you might experience along the way, and some tested tactics, may help set you up for greater success and (hopefully) less frustration.

Today we're choosing a narrower topic within decluttering: papers and documents of all types. Why? The black and white of documents may be more emotional than you first imagine and all to easy to dismiss and toss when time and stress conspire against you. For a more general discussion about decluttering and brain health, check out this article.

___________

Life is life, busy and full. And whether we intend to collect and hold onto documents, photos, magazines and more, it happens. Sometimes we have best intentions of someday putting that all to use—"how to” do something around the house, tips for gardening, vacation brochures—or we fear that we may need it one day, e.g., warranties, user manuals, and tax papers. Even with modern day options like Pinterest, paper is still top dog for many of us.

So, when it comes to a breaking point, and you realize you just have too much, you can’t find anything, or maybe you’re preparing for a move, how you get through it all becomes the question. And when the person who owns the items has advancing dementia, we’ve learned there are some interesting complications to be aware of and to plan for to reach a productive, if not happy, ending. 

Here are a few common complications to consider:

• • • Sometimes those living with dementia may believe people are taking items from them that are in fact items they have chosen to get rid of or are still in the home, but they cannot recall where they are located.
    • Visual cues range from helpful to critical memory prompts, and yet all of one’s belongings cannot possibly be out on display for a safe or pleasant home environment.
    • Loved ones and other care providers may be under time pressure for a move to downsize or transition into a memory care-supported community and thus while the home may technically have space for all the belongings, there is a need to begin decluttering and downsizing. The person with dementia may know, and forget, this move is coming.

Common Paper Clutter, the “Why” Behind It, and What Now

Magazines. You paid for them. You enjoyed them. You plan to reference them. You have/had kids that need them for projects. Maybe you haven’t even read them, because you want to read them closely and that takes time you can’t seem to find. So, you hold onto them. 

For people with advancing dementia, … reading through periodicals may no longer even be possible due to poor short-term memory recall. 

What now? Drop off with schools, recycle, sell collectible issues, Artifct those with memories attached, like these Seventeen magazines from the 60s.

Warranties and User Guides. Having the warranties and user guides in hardcopy can feel reassuring, you have recourse, you have details on what to do if there’s a problem. And not so long ago, these documents simply weren’t available unless you kept them in hardcopy. Times have changed. And many times, warranties aren’t even valid without registering your purchase within a certain period of time. Was that 30 years ago? 

For people with advancing dementia, … the visual support of a hardcopy is often necessary for memory recall. But, in reality, will that person be responsible for repairs or administrative tasks to support a claim? 

What now? Digitize valid warranties, and, with few exceptions for collectibles or antique items potentially, let the user guides go. You can find them online. 

Photos. The older the better, as memories go. And if you know what they are and you are not sitting on triplicates, blurry images, and unknown scenes, maybe they aren’t too cumbersome. But when you have photo clutter, and original negatives, you have risk of loss and degradation and an accessibility issue. You can’t likely keep it all out in the open and accessible. Digitization is your ally! (Check out tips for digitization.)

For people with advancing dementia, … talking through photos and the stories behind them is not only good for the individual but can bring them closer to loved ones and caretakers who will enjoy hearing the stories and capturing their loved one’s history and legacy. 

What now? Artifcts really helps with favorite photos – pair photos (a picture of them and/or the digital copy) together in an Artifct and the story behind them. You can even add video or audio of you/your loved one telling the stories. Photos can’t talk after all!

Letters and Greeting Cards. They are personal, the other person touched them, wrote on them, took the time to send them to you the old-fashioned way. The problem is they proliferate, and you store them away without looking back through them, so what good are they then? They are not all created equal – quick, functional notes, greeting cards with just a signature … – and yet we keep them all as though they are equal!

For people with advancing dementia … Like photos, the older the better for memory recall. And when the people who may have given them to you are no longer present, this can be very grounding and ease loneliness and anxiety to have these touchpoints with your past.

What now? Encourage a three-pile sort:

1. 1. 1. 1. 1. 1. 1. The benign, less meaningful that you can recycle;
                  2. Special ones you can give away to another person who might cherish them;
                  3. Historic, only copies, and the most meaningful to keep. For group three, this is the time for digitizing, scanning, or photographing them, whatever suits your needs and budget (time and money). Consider Artifcting important cards and letters so they are secure and preserved, as well as accessible whenever you want to see them, and easy to share. If you have room, consider displaying some again framed and set on a side table or bookshelf, for example.

_________________

No matter what type of papers and documentation lurk as the result of a life well lived, take it bit by bit, listening along the way if you are helping to understand what’s most meaningful and why. This alone will take you a long way. Preserving the memories and stories will help make this process of letting go that much smoother. It’s not truly gone then; it’s there for reliving and sharing the experience.

###

© 2023 Artifcts, Inc. All Rights Reserved.

Reading time: 7 minutes  

If you’ve ever needed a better reason to stick to or create a resolution to declutter your home, this one might do it: It’s good for your brain. And we’ve seen it firsthand.  

In today’s piece for ARTIcles by Artifcts, we talk openly about facing a loved one’s dementia diagnosis, and how, maybe to your surprise, decluttering can help. We are grateful to include specialist insights throughout from Cathy Rice, certified senior move manager and life-long educator.  

________________

Dementia is heartbreaking, terrifying, and, so far, irreversible. Even if a loved one is in many ways themself, we know the disease is slowly changing them and shortening their life. I know. I have a loved one who is among the more than 50 million people worldwide with dementia now and already lost a loved one to dementia as well.  

Some of us react to this sort of diagnosis with a desire to do something, anything, to help, to make our loved one’s life in any way better, to take the tiniest measure of control over the disease. We dive into a multi-prong tactical to-do list that we must continuously update as together we progress from diagnosis, to sharing that diagnosis with others, to learning how to manage the disease and being as prepared as possible across legal, medical, financial, and insurance fronts.  

As I sought out my own ways to help, I expected I’d find information about diet, exercise, and social activities, both for my loved one with dementia and their primary, day-to-day care provider. And I did. What I was surprised to find recently while browsing HFC, Shining a Light on Alzheimer's: 5 Brain Health Habits was the hot mainstream topic of decluttering.  

Benefits of Decluttering for Those With Dementia 

You know decluttering well from TV shows like The Joy of Swedish Death Cleaning and The Home Edit, books including Marie Kondo’s famous The Life-Changing Magic of Tidying Up, and bins and more from shops like The Container Store. Decluttering to support someone with dementia in some ways is like decluttering for people with normal brain health. Too much stuff can literally be dangerous if we cannot safely navigate our homes. Some of us are also more sensitive to feeling drained by too much stuff lying about around us.  

Of course, when you have dementia, decluttering has other benefits, too. 

• • • Reduce stress. Stress reduction is imperative when you have mild cognitive impairment or dementia. And decluttering can mean clearing away some of the to-dos that come to mind when people see stuff to tidy, dust, or keep safe. Have you experienced a loved one with dementia hiding things to keep the item safe? I am sure you have because it's an incredibly common behavior. 
    • Improve sleep. Quality sleep is critical for the brain’s nightly reset. Busy surroundings can lead to busy brains and may even sow confusion in bedtime routines.  
    • Safety, safety, safety. We know, decluttering is about aging well in place for all of us as we age, but it’s especially true for people with health conditions, like dementia, that can make them more vulnerable to confusing and distracting surroundings.
    • Avoiding anything close to hoarding. Keep in mind, hoarding disorder is its own condition, but managing even the clutter of daily life is more difficult when you have dementia because of increased challenges in making decisions.  
    • Purpose. We know finding purpose at any age is important. Here we are talking about giving the decluttering process a purpose to help your loved one part with more items than they might otherwise be willing to do. Purpose might be supporting a local shelter, resupplying charitable builders with tools, or reconnecting with loved ones when you pass down items. You get the idea. 

Decluttering for Dementia

We’ve prepared these tips from our own practical experience helping our loved ones with dementia as we try to help make sense of it all, including one’s surroundings.* In some cases our loved ones were also decluttering to downsize and move. In others, it was more of a practical decluttering, for safety and mental health.  

* We are not medical professionals. If you are considering radical changes to your loved one’s home enviornment, you should consult first with a specialist licensed in dementia care.

LIGHTS ...

Before you start your declutter, check the lighting throughout the home. Living like a cave troll generally does no one very good. But dementia is not only about memory. If you can see well what’s around you, it’s easier to make sense of your surroundings (and of course it’s safer). Make it easy to see the light switches, too. Understanding and interpreting surroundings, like a white switch on a white wall, can become an impediment for someone with dementia. 

Cathy’s Insight: Adding felt pads to any lighting fixture to differentiate the feel of the switch from the fixture itself or a simple icon as a visual cue helps to support the brain's understanding of the item with its function.

… CAMERA, ACTION!

Start from the ground, and work your way up.

What’s on the floor? Stacks of stuff? Wandering power cords? Rugs that slip and shift? Take a fresh look. Then move your eye upward to the surfaces of counters and entry tables. If someone needed to quickly grab onto a surface to prevent a fall, would they have a secure place to grab?  Is there a clear and secured place for common objects, like house keys?

Cathy’s Insight: People with dementia often find comfort in knowing that their stuff is close-at-hand. Create a "command center" within easy reach of their favorite chair for essentials (eyeglasses, books, pencils, fidget items, etc.).  

And about those rugs … if you must keep them, use carpet tape to secure edges to the floor. The same applies to small storage trays, which you can secure with surface-safe tape or museum putty.

Favor simple home furnishings.

As we know stress takes its own toll on the brain; let’s try to minimize the stress home décor can accidentally create. One Arti Member told us, “My loved one was disturbed by a decorative lumbar pillow that had a shaggy fur cover. It looked like a small dog.” Sometimes textures and patterns can be difficult for people with dementia to interpret. Likewise distinguishing whether an object is inanimate. This is why some people with advancing dementia find comfort with life-like pets such as those from Joy For All.

Take it down a notch.

This is about audio clutter. Too much and/or competing noises can be incredibly distracting for anyone, particularly someone with dementia. Think about simultaneous noise from the television, washing machine, and someone on a phone call, for example.

Cathy’s Insight: Taking this point a step further, family, friends, and caregivers should practice standing in front of, and at eye level if appropriate, people with dementia before speaking with them. Get their attention by saying their name and then speak simply and succinctly. 

Set it aside, together. Do not remove it. 

Don’t remove it immediately, if you do not have to, that is. Rushes to declutter in support of someone with memory loss could lead to irreversible loss of cherished mementos that also can serve as visual cues for familiarity and comfort. Is there an alternative way to display the items that the person with dementia says they care most about? Maybe try grouping like items on a shelf or table where they will see them often. For photos, you might even consider a digital photo frame, such as those from Nixplay, Aura, or any of the many other options.  

For items that do not make the cut, if space permits, store them in an appropriate box, and set them aside so you can pull them back out later if needed or as part of a monthly or maybe seasonal rotation. We recommend you Artifct them before they go into the box and tag them to easily recall what you've stored. This approach does not apply to duplicates, meaningless bits and bops, or trash. Consult with your loved one always as well as your own good judgement.

Clarity of Purpose for the Win

Our final decluttering tip is about visual chaos. If you open a drawer and see a jumble of socks, pants, and t-shirts, you could get distracted or confused. If a cabinet has five options for plates, and 10 options for cups, which should you choose? Not only should you streamline what’s inside for simpler decision making but consider visually labeling doors to indicate what’s inside. This gadget could help you get started with easy printing of images from your phone.

Cathy’s Insight: As the disease of dementia progresses, consider only placing the clothes needed for that day in the drawer or use a shelf in a bedroom/bathroom as the place for their daily wardrobe.  

Do you have decluttering tips for dementia? We’d love to hear them! You can contact Editor@Artifcts.com.

Happy Artifcting!

_________________

ADDITIONAL REFERENCES

If you are a caregiver or supporting someone who is, you may find it helpful to browse and share these related resources.

Alzheimer's Society, UK: 10 Ways to Make Your Home Dementia Friendly 

US National Institute of Health: Study of Home Modifications for People with Dementia 

Wisconsin Alzheimer's Institute: Communication Strategies in Dementia Care  

Mayo Clinic: Clearing Clutter Benefits Your Health and Well-Being

Psychology Today: The Many Mental Benefits of Decluttering 

AARP Michigan: Dementia Resource Guide for Families

###

© 2023 Artifcts, Inc. All Rights Reserved.